2017 Update

Hi everyone! Sorry I haven’t posted in a long time. There isn’t really anything new to talk about, so I’ll just share a summary of what’s been going on.

My health is still 24/7/365 bad. The past two months, for whatever reason, have been particularly challenging. I’m lucky if I can handle going out of the house for a bit. There are many days where I am basically stuck in bed. The symptoms are the same as listed in the Earth Axis Syndrome article.

I looked into Lyme disease again (using the Western Blot test this time), but the results were again negative. The current theory is still Utricular Dysfunction, but there is no good way to prove it.

I have been seeing a psychologist for cognitive behavioral therapy to help deal with all the anxiety that comes from these symptoms. I also take anti-anxiety medications. Anxiety is a secondary symptoms though. As far as balance therapy or meds go, nothing I’ve tried has helped. I try to go out each day as a form of physical therapy to push my balance system.

I need to file for disability. It’s been a long time coming. The application process itself is overwhelming. They want to know every doctor, test, test result, treatment, and treatment result. I have 10 years of history of seeing so many doctors, that getting all the data together is like writing a book. In the end, I expect it will be a difficult challenge to get recognized as disabled without a diagnosis that could more easily explain what is wrong with me.

I appreciate the emails I’ve received from others having similar symptoms. This gives us a chance to exchange information and encourage each other. Please feel free to contact me if you have any questions or information related to these symptoms. It may take me a few days to reply, depending on my health.

You can also contact me if you would like to talk about MangAI. My health doesn’t let me program these days, but I can answer questions related to digital manga processing and do simple things such as adding new device profiles to MangAI’s built-in library.

Best wishes to everyone!

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